I woke up this morning with my face all swollen and played hardball. I called a bunch of allergists begging for an appointment today and finally, FINALLY, I got one with a doctor in Providence.
I did about 80 down I-95 to get there in time, I was so desperate. I had a consult and wasn't even supposed to see the doctor today but when the nurse saw my face and heard that I was in the hospital 10 days ago she said she'd pull some strings so I could see the doc today.
I love this doctor! It's the first time I wasn't blown off. I've been having some serious misgivings about my primary care physician and now I KNOW that I need to change doctors (Jami -remind me to ask you who you see again). We talked for a while - he was trying to get a sense of my episodes, frequency, etc as well as family history. He did a little examination, but the swelling was so bad he didn't really need to do anything but look at me!
And then, finally! He asked me if I'd ever heard of angioedema. I had, but only through WebMD trying to figure out what the hell was wrong with me. The doc said I most likely have idiopathic angioedema. Angioedema is spontaneous swelling below the skin surface usually on the lips and around the eyes (decribes me perfectly). When it occurs spontaneously, independent of an allergic trigger, it is called Idiopathic Angioedema. So basically - I am allergic to myself! There is no cure, they can just treat the symptoms wich antihistamines, oral steroids, and epi-pen if breathing difficulty happens. Hopefully, over time, it will happen less frequently. I really hope so because I'm sick of looking like Quisimodo every week or two!
I have a condition and it's called idiopathic angioedema. I'm so happy to have an explanation! Now everyone say a little wish/prayer/whatever that this goes away on its own, okay? Thanks!